Professionals’ experiences of supporting families where a parent has an intellectual disability

Document type: Conference Presentations
Peer reviewed: Yes
Author(s): Ingrid Weiber, Mona Eklund, Per-Anders Tengland
Title: Professionals’ experiences of supporting families where a parent has an intellectual disability
Translated title: Tjänstemäns erfarenheter av att stödja familjer där en förälder har en intellektuell funktionsnedsättning
Series: Journal of Intellectual Disability Research
Conference name: IASSID World Congress
Year: 2012
Volume: 56
Issue: 7-8
Pagination: 745
ISSN: 1365-2788
Publisher: Wiley
URI/DOI: 10.1111/j.1365-2788.2012.01583.x
ISI number: 11/67
Other identifiers:
Organization: Blekinge Institute of Technology
Department: School of Health Science (Sektionen för hälsa)
School of Health Science S-371 79 Karlskrona
+46 455 38 50 00
Authors e-mail:
Language: English
Abstract: Aim: The aim of this study was to describe the experiences of professionals supporting families where a parent had an intellectual disability (ID).
Method: The professionals were identifi ed by purposive sampling. Seven focus groups were formed, including 29 professionals working for different welfare administrations on the county and municipality levels in the south of Sweden. The duration of the interviews varied between 45 minutes
and 1 hour 45 minutes. The interviews were transcribed verbatim and were analyzed using qualitative content analysis.
Results: The analyses are ongoing and the preliminary results are as follows: the professionals supported the families on the basis of strategies each administrative unit had developed; a need for more frequent cooperation between the units was
highlighted; facilitating factors for successful support were parental ability and willingness to follow advice and support measures; aggravating factors were lack of cooperation and lack of adequate strategies among the various kinds of professionals involved, and parental fear that the social authorities would not let them keep the child.
Conclusion: A tentative conclusion is that collaboration around these families is necessary and should include professionals from different areas in order to achieve adequate support.
Summary in Swedish: En preliminär slutsats av den pågående analysen är att det är nödvändigt med samarbete kring dessa familjer. Nyckelord: Funktionsnedsättning, familj, stödstruktur, samverkan.
Subject: Public Health\General
Keywords: Disability, Family, Structure of support, Collaboration, Cooperation