Children born to women with intellectual disabilities: 5-year incidence in a Swedish county

Document type: Conference Presentations
Peer reviewed: Yes
Author(s): Ingrid Weiber, Johan Berglund, Per-Anders Tengland, Mona Eklund
Title: Children born to women with intellectual disabilities: 5-year incidence in a Swedish county
Translated title: Barn födda av kvinnor med intellektuella funktionsnedsättningar: 5års-incidens i ett svenskt län.
Series: Journal of Intellectual Disability Research
Conference name: IASSID World Congress
Year: 2012
Volume: 56
Issue: 7-8
Pagination: 743
ISSN: 1365-2788
Publisher: Wiley
City: Halifax, Canada
URI/DOI: 10.1111/j.1365-2788.2012.01583.x
Other identifiers:
Organization: Blekinge Institute of Technology
Department: School of Health Science (Sektionen för hälsa)
School of Health Science S-371 79 Karlskrona
+46 455 38 50 00
Authors e-mail:
Language: English
Abstract: Aim: The aim of this study was to investigate the five-year incidence of children born to women with intellectual disabilities (ID) in a county in Sweden.
Method: In the county of Blekinge, women born between 1975
and 1989 were identified from school registers for children and adolescents with ID. The women’s personal identification numbers were linked and matched with the Swedish Medical Birth Register.
Results: In 2010, a total of 98 women with ID were identified from the school registers. The Medical Birth Register showed that nine of these women had given birth to children: one woman gave birth to two children, and eight women had had one child each. The ten children were born between 2004 and 2008.
Conclusion: Approximately 2.12 per thousand children are born per year to women with intellectual disabilities according to the incidence rate calculated as a result of the present study. For the whole of Sweden that rate indicates an incidence of approximately 225 children each year. The prevalence of children (aged 0–18 years) being born to women with intellectual disabilities is, on the basis of this study, estimated at about 4,050.
Summary in Swedish: Uppskattningsvis föds 2.12 barn per 1000 födda barn av en mamma med en intellektuell funktionsnedsättning. För hela Sverige skulle detta betyda att det årligen föds ungefär 225 barn som delar denna typ av livsstart. Nyckelord: Funktionsnedsättning, familjer, föräldraskap
Subject: Public Health\General
Keywords: Disability, Families, Mothers with intellectual disabilities, Parenthood, Prevalence
Note: 11/67